Duchenne Muscular Dystrophy Treatments Petition: A Call to Arms

There are so many diseases out there that are still untreatable. People really only hear about diseases the news happens to talk about, or how their favorite stars are promoting select charities for Cancer or AIDs???????. Yes, those are important things to treat. But what about all the other diseases out there?

Duchenne Muscular Dystrophy (Or DMD)is one of these diseases that has gone forgotten for far too long. The disease affects all the muscles in your body. And they deteriorate over time, until the heart stops or you don’t have strength to clear mucus from your lungs.

Everyone  will die one day: that’s a fact. But give them and me a fighting chance to live as long as everyone else. To fall in love. To raise a family… I know I want that choice. And as will future generations diagnosed with this dragon of a disease.

Over the last few years, there have been trial treatments for DMD, which have helped all of the trial subjects tremendously. These treatments aren’t a full blown cure, but they rather slow down the deterioration. And instead of releasing these treatments to the people like me who would benefit, the FDA has been taking to long to make the treatments available public.

So, a group of fellow people like me, and people like you, created a petition on Whitehouse.Gov to tell President Obama, Congress, and the FDA that we the people want the FDA to accelerate approval for safe and effective therapies for those affected by Duchenne Muscular Dystrophy.

But we can’t do this alone.

So, I’m calling on you to raise your sword and join us in this battle. We need 12, 742 more signatures to make the cacophony of our battle cries heard. Only together can we make this happen… For the future.

Here’s the link: https://petitions.whitehouse.gov/petition/urge-fda-say-yes-accelerated-approval-safe-effective-therapies-children-duchenne/qtRww0rN And please share it with everyone you know, everywhere. We need 100,000 signatures by the 29th of March.

Let’s slay some dragons.


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s